Tomasz Guzowski is a patient from Poland who could not walk, and after one round of stem cells, he is able to get out of his wheelchair and stand on his own and take a few steps. He later progressed to walking with crunches as support.
The history of my illness goes back to the year 2012. Before, I was a normal guy, married, with a young daughter, and a son about to be born. I had my hobbies like dancing and speedway racing. Then, one day – all of a sudden – my leg felt stiff, and a warning bell rang at the back of my head. In order to take a single step, I had to lean against something like the wall.
Walking was becoming more and more difficult, so I made an appointment to see a neurologist, and that is how my visiting doctors, surgeries and hospital waiting rooms started. It took 2 years to have me diagnosed. The name of the disease and its future effects weighed me down to the ground.
I suffer from X-linked adrenoleukodystrophy (X-ALD). I know, it is difficult to pronounce, no need to remember the name. This is a genetic disease and in my family my uncle had it, too, being mistakenly treated for multiple sclerosis for many years. Unfortunately, despite his young age, he is no longer with us… The disease destroys the layer which protects the nerve cells located in the brain. These cells make us able to think and control our muscles.
I experience strong spasticity, overactive bladder, Addison’s disease, and my muscles are getting weaker and weaker day by day.
I would like, with my wife, to watch my kids grow up. I would like to be there for them, offering my support and fatherly strength and advice.
There was no hope for me in Poland, so I started to look for help abroad and that is how I came across the Hino Medical Center located in Ensenada, Baja California Mexico. I was introduced to the owner Dr. Michael Hino where we started a series of tests and recommended me to an innovative gene therapy with Pluripotent Stem Cells.
I’ve been to you twice [Hino Medical Center]. After the first time and the first four months, I saw improvement. The most important thing for me is less spasticity. Thanks to this, the muscles do not destroy themselves, because they used to be tense all the time.
Now I can start training and building muscles. Everyday, I train outside as much as I can. This allows me to get up from a wheelchair more easily. Every week I take more and more steps. The sick bladder was also improved.
After the second visit to the clinic I have seen more improvement, although I know it needs time.
Thanks to Hino Medical Center.